March 7, 2014 at 6:00 AM
WASHINGTON, D.C. - More than 100 grassroots leaders from all over the country descended on Capitol Hill on Feb. 26 to meet with senators and members of Congress on behalf of The Parkinson’s Action Network (PAN).
Founded in 1991, PANs primary mission is to provide an informed, organized and effective voice in public policy issues affecting the search for a cure for Parkinson’s Disease. PAN lobbies legislators on behalf of the Parkinson’s Disease Community.
PAN enables patients, caregivers, doctors, researchers and others to become advocates. A group of those advocats will make visits to Capitol Hill to meet with lawmakers in an effort to secure funding for the disease.
"It is quite humbling sitting with a United States Senator and telling them your personal story," said New Providence resident Joe Narciso, PANs assistant state director for New Jersey. "I'm a husband and father of three. I have had Parkinson's for over a decade. There is also an incredible feeling of purpose, power and pride advocating with PAN.
"I feel like I am doing something that I would not otherwise have an opportunity to do: speak face to face with the people who truly are decisionmakers," Narciso said. "I know that what we do with PAN is important, tangible and real. And I know we are making a difference."