NJ Congressman Reintroduces CARE Act for Tourette Syndrome

July 24, 2014 at 10:57 AM

The New Jersey Center for Tourette Syndrome is actively garnering support for the passage of a critical bill, the Collaborative Academic Research Efforts (CARE) for Tourette Syndrome Act of 2014 (H.R. 4221). The CARE Act represents an exciting opportunity for the entire TS community—calling on our government to stimulate research to increase understanding of and improve treatment for Tourette Syndrome. NJCTS  is collaborating with the Tourette Syndrome Association to ensure this initiative receives sponsorship across the country.

Originally introduced by NJ Congressman Albio Sires in December 2011, with a Companion Bill introduced in the Senate by NJ Senator Robert Menendez shortly thereafter, the CARE Act amends the Public Health Service Act for the expansion, intensification and coordination of the programs and activities of the National Institutes of Health with respect to scientific and clinical research on Tourette Syndrome. The CARE Act does not authorize any new funding for TS, but rather reallocates existing funds towards new programs to more effectively research and collect data on TS.

“I am pleased that the national Tourette Syndrome Association has joined with the New Jersey Center for Tourette Syndrome on the legislative effort to move forward the Collaborative Academic Research Efforts for Tourette Syndrome Act of 2014,” said Congressman Sires. “I introduced H.R. 4221 to improve the lives of individuals and families impacted by Tourette Syndrome through enhanced research efforts on the cause and cure for Tourette Syndrome.  Since my days in the New jersey state legislature, I have been proud to be supportive of NJCTS’s efforts to improve the quality of life of those affected by Tourette Syndrome in New Jersey.  Now, in Congress, that progress is being made at the national level through the introduction of the CARE for Tourette Syndrome Act and I look forward to continuing the fight for better knowledge and care for Tourette Syndrome with both the assistance of NJCTS and TSA.”

Sign Up for E-News

The Act would also require the NIH to award grants and contracts to academic, healthcare and other institutions to support the establishment of four to six Collaborative Tourette Syndrome Research Centers in different regions of the country. These centers will host high level, concerted, scientific and clinical research into TS and related disorders.

Lastly, it would facilitate the collection of important data on various aspects of TS which can be used to provide a better understanding of the disorder, and assist with the development of programs and strategies aimed at advancing the TS research agenda.

“Similar government mandates have led to critical advances in other disorders. We believe the CARE Act will have significant impact in the field of TS,” said Annetta Hewko, TSA President. “Imagine the breadth and depth of TS research projects that could already be underway if these Collaborative TS Research Centers existed today! That is why we are collaborating with the New Jersey Center for Tourette Syndrome and Associated Disorders and committed to engaging TSA members across the country.”

“We are pleased that TSA has joined with us to create national awareness of this New Jersey initiated federal legislation that will ultimately make a difference in so many lives.  We along with families from across our state and across the nation are grateful to Congressman Sires and Senator Menendez for their many years of advocacy on behalf of kids and families living with Tourette Syndrome,” said Faith W. Rice, NJCTS Executive Director.

NJCTS and TSA are urging members to write to their local elected officials asking them to support the bill, with concerted efforts to do so during national Tourette Syndrome Awareness Month, May 15 through June 15.

About the national Tourette Syndrome Association

Marked by involuntary vocal sounds and physical movements called tics, Tourette Syndrome is an inherited neurological condition frequently misunderstood and misdiagnosed. Founded in 1972, the national Tourette Syndrome Association (TSA) is celebrating its 42nd year as the only national, voluntary health organization for people with Tourette Syndrome. The TSA strives to improve the lives of individuals and families living with TS by providing education, service and support, promoting research and advocating on behalf of the whole TS community.   The TSA directs a network of 33 Chapters and more than 55 independent support groups across the country. For more information on TS, call 1-888-4-TOURET, visit http://tsa-usa.org, or find us on Facebook and Twitter.

About the New Jersey Center for Tourette Syndrome and Associated Disorders, Inc.

New Jersey Center for Tourette Syndrome and Associated Disorders, Inc. (NJCTS) was established in 2004 as the nation’s first Center of Excellence for Tourette Syndrome.  NJCTS provides services for families, outreach and support to the education and medical communities and support for collaborative research into better treatments and a cure for Tourette Syndrome.  For more information about the New Jersey Center for Tourette Syndrome and Associated Disorders call 908-575-7350, visit http://njcts.org, or find us on Facebook and Twitter.

TAP Into Another Town's News:

TAP Into Another Town's News:

Sign Up for E-News

Millburn/Short Hills

Senior Rabbi of B'nai Jeshurun of Short Hills Leads 50 Adults to Israel

SHORT HILLS, NJ - Congregation B’nai Jeshurun’s Senior Rabbi, Matthew D. Gewirtz, led a group of 50 adults to Israel in early November. In addition to touring, the trip included Adult B’nai Mitzvah services and discussions with local leaders on various aspects of life in Israel.

Rabbi Gewirtz began his tenure as the Senior Rabbi of Congregation B’nai Jeshurun in ...

Millburn-Short Hills Resident Participates In Woman's March in Washington, D.C.

January 21, 2017

MILLBURN, NJ - Throughout the country and around the world, Saturday, January 21 marked Women’s March on Washington where an estimated 500,000 people descended on the nation's capital. Additional 'Sister Marches' took place in cities around the world including Millburn Township neighbor Westfield. 

Millburn-Short Hills residents joined the movement, and one resident ...

Theft at Louis Vuitton; Fraud and Forgery Strike Nordstrom at Short Hills Mall

January 14, 2017

On January 5, 2017 Millburn Police Officer Zonn responded to the Louis Vuitton store at The Mall at Short Hills on a theft report. Louis Vuitton personnel report a Hispanic male wearing an olive colored jacket and jeans concealed a pair of sunglasses valued at $760.00 and left the store without making payment. The incident is under investigation by the Millburn Police Detective Bureau.

On ...

Upcoming Events

Carousel_image_598e4bee3f95caa87a95_3a428b670b9e744650bb_unnamed__8_

Mon, January 23, 7:45 PM

Education Center, Millburn

Millburn Board of Education Meeting

Carousel_image_112f10965420be3a0166_612c4a3991ac14730b95_best_c20d525a95812bff361b_56974e1f719431e1e0d8_1480817210980

Tue, January 24, 11:00 AM

Millburn Free Public Library, Millburn

EMPOWER HOUR - MMAC Empower Hour Continues the ...

Carousel_image_be5f7a9fcc36c2ca61c3_79c1b615c0888b5b177d_img_0339

Wed, January 25, 8:00 PM

Ricalton's Tavern, S. Orange

Roll Call Comedy Lab

Arts & Entertainment

Carousel_image_6166a3b9d22d21868cef_slide1

Thu, January 26, 7:00 PM

Millburn Free Public Library, Millburn

Bike/Walk Millburn – First Meeting of Townwide ...

Hellenic Therapy Center to Host Anxiety Workshop for Ages 10-14 Years

January 22, 2017

Anxiety is a normal part of life and children often go through phases of feeling overwhelmed or nervous from time to time.  When anxiety is experienced more consistently however; that nervousness, shyness and fear can have serious negative impacts on a child’s life.

Anxiety disorders affect one in eight children.  Research shows that untreated children with anxiety disorders ...

Video: Point View's Dietze Says Beware of Headwinds in 'Market Call' Appearance

Point View Wealth Management's Founder, President, and Chief Investment Strategist, David Dietze, answers audience questions on BNN's 'Market Call':

bnn.ca

Point View Wealth Management, Inc. works with families in Summit and beyond, providing customized portfolio management services and comprehensive financial planning, to develop and achieve their financial ...

Audio: Point View's Petrides Tells Bloomberg Says Content Move Makes Sense for Apple

Point View's Managing Director and Portfolio Manager, John Petrides, live on Bloomberg Radio (Interview starts at 1:35) discussing Apple's potential move into making original video content:

assets.bwbx.io

Point View Wealth Management, Inc. works with families in Summit and beyond, providing customized portfolio management services and comprehensive ...

Pure Barre Short Hills Announces 2017 Fitness Challenge

SHORT HILLS, NJ – Pure Barre, the largest and most established barre concept in North America, is pleased to announce the Set The Barre challenge, to help new and existing clients reach their 2017 health and fitness goals.

Whether you’re looking to switch up your fitness routine or start working out, Pure Barre can work with you to accomplish your new years resolutions. Designed to ...

Closed Fund Open Mind

Closed-end funds (CEFs) can play an important role in a diversified investment portfolio. They offer benefits similar to those of an open-end mutual fund, but also sport unique advantages.  

Unlike a traditional open-end mutual fund, CEFs have a fixed number of shares available to trade. Their price is not tied to the value of the underlying portfolio. The only way the number of shares ...