Health & Wellness

Goryeb Children’s Hospital Is Kickoff Location on Saturday, Feb. 3, for Parent Project Muscular Dystrophy’s (PPMD) 2018 End Duchenne Tour

54dfa854f5e7b8bd31bb_7c5a9d61ae55e577c0c9_EDT2018_v02.jpg
54dfa854f5e7b8bd31bb_7c5a9d61ae55e577c0c9_EDT2018_v02.jpg

MORRISTOWN, NJ - Goryeb Children’s Hospital, part of Atlantic Health System, will proudly serve as the kickoff location for the Parent Project Muscular Dystrophy’s (PPMD) 2018 End Duchenne Tour across America.

Parent Project Muscular Dystrophy (PPMD) is the largest, most comprehensive nonprofit organization in the United States focused on finding a cure for Duchenne muscular dystrophy—a genetic disorder that causes progressive muscle degeneration and weakness in young males.

The no-cost, day-long event is open to parents, families, advocates, caregivers, and physicians interested in the latest advancements in Duchenne care and research. The Kickoff event is from 8 a.m. to 5:30 p.m. Saturday, Feb. 3, at Malcom Forbes Auditorium at Morristown Medical Center, 100 Madison Ave., Morristown. To register, visit www.endduchenne.org/NJTour

Sign Up for E-News

“Neurological and neuromuscular disorders like Duchenne can cause loss of function and mobility the longer they are undiagnosed and untreated, so there is a critical need for frequent communication about the latest treatments and research,” said Dr. Jahannaz Dastgir, medical director of the Pediatric Neuromuscular Medicine Program at Goryeb Children’s Hospital, who will also present at the meeting. “Atlantic Health System is proud to partner with PPMD on its End Duchenne Tour to share research, and provide a safe, supportive forum for the Duchenne and muscular dystrophy community.”

“Throughout our 24-year history, PPMD has aimed to bring updates on research, care, and advocacy to families affected by Duchenne muscular dystrophy,” said Pat Furlong, Founding President & CEO, Parent Project Muscular Dystrophy. “This is a unique experience for participants to better understand the progress being made in the fight to end this devastating disease, which the team at Goryeb Children’s Hospital experiences firsthand every day.”

 

Goryeb Children’s Hospital offers a number of specialty services for children with neurological and neuromuscular disorders and diseases including:

  • Autism and development – Goryeb Autism and Development Center (GADC)
  • Brain and spinal tumors – Goryeb Neuro-Oncology Program (GNOP)
  • Concussion – Goryeb Concussion Program (GCP)
  • Epilepsy – Goryeb Epilepsy Program (GEP)
  • Headache and Migraine – Goryeb Headache Program (GHP)
  • Muscle and Nerve diseases – Goryeb Neuromuscular Program (GNP)
  • All general neurology problems

     

In addition, the medical center is currently pursuing a Center of Excellence designation from PPMD, which will enable its medical team to lead and participate in clinical trials. In 2017, Goryeb Children’s Hospital was the first hospital in the state to administer nusinersen, a newly approved medication to a patient with spinal muscular atrophy (SMA), a rare and sometimes fatal genetic disease that causes progressive loss of muscle strength and movement.

Additional sites on the 2018 tour include Washington DC, Cincinnati, Ohio, Birmingham, Alabama, Grand Rapids, Michigan, Minneapolis, Minnesota, Billings, Montana, San Francisco, California, and Scottsdale, Arizona.

TAP Into Another Town's News:

You May Also Be Interested In

Sign Up for E-News

Basking Ridge

Somerville: Cobalt Apartments to Receive Land Development and Planning Award

February 14, 2018

SOMERVILLE, NJ - The Somerset County Board of Chosen Freeholders and the county Planning Board will honor six local projects, including the Cobalt Apartments on Veterans Memorial Drive at the 35th annual Land Development and Planning Awards at 6 p.m. Tuesday, Feb. 20, in the Freeholder Meeting Room, located on the third floor of the county Administration Building at 20 Grove St.

Free ...

‘Reefer Madness’ Comes to Chatham Borough Council; Cannabis Advocates Make Pitch for Chatham Marijuana Shop

February 14, 2018

CHATHAM, NJ - A group of pro-cannabis activists came to the Borough of Chatham Council meeting on Monday night and used the public commentary portion of the meeting to ask the council to support a marijuana dispensary in town.

The advocates, who say they have attended more than 80 town meetings to inform about the benefits of medical cannabis, mentioned the 1936 movie "Reefer ...

Guest Column: The Great "Wait" of the College Process

February 16, 2018

For all the high school seniors and their parents, we are in the stressful "waiting period".  We've just finished or are finishing applications to all the schools we might possibly want to attend next year and now sit and wait our fate after the $60-$80 non-refundable application fees to at least 8-13 schools and staring at some pretty ridiculous tuition fees.

Early ...

Upcoming Events

Sat, February 17

Scherman Hoffman Wildlife Sanctuary, Bernardsville

NJ Audubon: Volunteer Art Show!

Arts & Entertainment Green

Sat, February 17, 9:00 AM

The Center for Contemporary Art , Bedminster,

Dan Bischoff: Critic As Artist

Arts & Entertainment

Sat, February 17, 9:00 AM

The Center for Contemporary Art, Bedminster

Keepers of the Chroma: An Exhibition Regarding ...

Arts & Entertainment

Fellowship Helping Hands Receives Home Care Award

February 16, 2018

Fellowship Helping Hands, the home care agency operated by Fellowship Senior Living in Basking Ridge,  has received the 2018 Best of Home Care® – Provider of Choice Award from Home Care Pulse, announced Liz Fandel, vice president of Home Community Based Services at Fellowship Senior Living.

Fellowship Helping Hands is a New Jersey licensed home care service for older and ...

AtlantiCast

AtlantiCast Medical Minute: Atlantic Orthopedic Institute’s Scoliosis and Spinal Deformity Center

On this episode of the AtlantiCast Medical Minute, we’ll take you inside the Atlantic Orthopedic Institute’s Scoliosis and Spinal Deformity Center, with the center’s director, Jason Lowenstein, MD.

Video Link: https://www.youtube.com/watch?v=1M7euCp86-c

AtlantiCast Episode 011

Breaking Atlantic Health System news on this week’s AtlantiCast! Plus, find out why Morristown Medical Center is one of the best hospitals in the nation when it comes to recovering from joint surgery, see the newest center for fighting brain cancer and an Atlantic Health System red-carpet premiere!