Health & Wellness

Breast Cancer is Complicated: Lance Holds Round Table Regarding New Legislature

Clockwise from left: Congressman Leonard Lance, Dr. John D. Cunningham, Surgical Service Line Chief, Summit Medical Group and Director of the Breast Care Center; and Kimberly Beer, Director of Public Policy for Susan G. Komen National;  Sally Sheperdson; Susan G. Komen Central and South Jersey Affiliate Executive Director; Veronica Vasquez, Patient Navigator, Trinitas Regional Medical Center; Chile Ramirez, breast cancer survivor; Dora Aria,Founder & Executive Director of Curémonos.   Credits: Eloquent Studios
Rep. Leonard Lance and New Jersey State Assemblywoman Nancy F. Muñoz take a moment to pose for a photo with Susan G. Komen North Jersey Staff. Back row: Liz Millman, Volunteer; Mary Ruotolo, Director of Development; Tina Jacobs, Director of Community Health; New Jersey State Assemblywoman Nancy F. Muñoz; Congressman Leonard Lance; Pamela Greene, Development & Volunteer Manager; Perla Haltner, Director of Operations; Maria Gilmour, Manager, Finance & Operations. Front row: Jenny Silecchia, Volunteer; Nancy Dango, Administrative Office Assistant; and Kristin Wenger, Vice President, Komen North Jersey Board of Trustees. Credits: Eloquent Studios
Congressman Leonard Lance talks with Susan G. Komen staff and cancer survivors, Tina Jacobs and Nancy Dango, at reception after round table forum. Credits: Bobbie Peer
Kimberly Beers, Director of Public Policy for Komen National with Kathi Wolder and Tina Jacobs. Credits: Bobbie Peer
Congressman Leonard Lance led a roundtable discussion in support of his sponsorship of the 2015 Breast Cancer Patient Education Act on June 22 at the Susan G. Komen North Jersey Headquarters in Summit. Participants included members of the medical community, Susan G. Komen local and national representatives, advocates and breast cancer survivors. Credits: Eloquent Studios
Dora Arias, Founder, Curémonos; Congressman Leonard Lance; Chile Ramirez, breast cancer survivor Credits: Eloquent Studios
Dr. Gary Smotrich, American Society of Plastic Surgeons (ASPS); Dora Arias, Founder, Curémonos; Congressman Leonard Lance; Dr. Gregory Greco, ASPS Credits: Eloquent Studios
Veronica Vasquez, Patient Navigator, Trinitas Regional Medical Center (a Komen North Jersey Grantee), with Congressman Leonard Lance and Kimberly Beer, Director of Public Policy for Susan G. Komen National. Credits: Eloquent Studios
Tina Jacobs, Director of Community Health, Komen North Jersey; Kristin Wenger, Vice President, Komen North Jersey Board of Trustees; Congressman Leonard Lance; Kimberly Beer, Director of Public Policy, Susan G. Komen National Credits: Eloquent Studios

SUMMIT, NJ - Congressman Leonard Lance (NJ07) held a round table session last week at the Susan G. Komen North Jersey's headquarters in Summit to discuss the state of the fight against breast cancer and his work in Washington to combat the disease. 

"I am very thankful to Komen for hosting the forum," said Lance. "We want to make sure that all women in the United States who undergo the challenge of breast cancer are fully aware of their options regarding reconstructive surgery."

Lance continued to tell TAP into, "Tremendous progress has been made in fighting breast cancer in the last generation. Susan G. Komen is at the forefront of all of that, but more progress has to be made."

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“All of us are working out of love for mothers, daughters, sisters and wives,” Lance told attendees at the roundtable discussion and talked further to TAP into of his late mother who died of breast cancer 50 years ago. "It is a completely different world regarding a breast cancer diagnosis than the world 50 years ago."

Lance recently introduced two important measures that address urgent concerns of the breast cancer support community: H.R. 2540, the Breast Cancer Patient Education Act and H.R. 2739, the Cancer Drug Coverage Parity Act, which has already been passed in New Jersey with the help of Assembly Woman Nancy Mũnoz. 

"We have championed many important ideas and collaborated on various policies to combat this disease. These two measures I have introduced in Congress will give patients more tools and resources in their fight. These types of policies are the bipartisan, practical solutions that can make a positive difference in the lives of many.”

Mũnoz (LD-21) spoke on her resolution in the State Assembly urging support for H.R. 2540, and similar legislation on the state level that mandated the goals of H.R. 2739. “Too many women suffering from breast cancer, particularly in minority communities, are inadequately advised of reconstructive options. I cannot understate the importance of the Breast Cancer Patient Education Act to women across New Jersey and the United States, and applaud Congressman Lance in his leadership on this issue.”

H.R. 2540, the Breast Cancer Patient Education Act will require that patients be informed of the availability and coverage of breast reconstruction and prostheses. Since 1998, Federal law requires that insurance companies cover reconstructive surgery and prostheses, whether it is at the time of surgery, or long afterwards. But studies have shown that many women are unaware of their options. Says Lance, “This bill intends to put into place an education campaign to ensure that women coping with breast cancer, especially those of ethnic and minority status, are made more fully aware of their options, and as a result, gain more control over their health care decisions.”

Cancer is complicated and is still so devastating, said Kimberly Beers, Director of Public Policy for Susan G. Komen National. The bill will impact everyone across the country. "This is a problem nationally. --- It is an opportunity to close a gap. We talk about disparities all of the time. Woman should have this information."

Giving the patient information in their native language is really important, said Veronica Vasquez, Oncology Patient Navigator for Trinitas Comprehensive Cancer Center in Elizabeth, whose work is currently funded by Komen. "Susan G. Komen's effort towards information is commendable," said Vasquez.

A letter sent to Congressman Lance from Dr. Judith Salerno, President and Chief Executive Officer of the Susan G. Komen just prior to the roundtable event, pledged the organization’s support of the bill and applauded Lance for his leadership. “While the decision to undergo breast reconstruction or use prostheses is a personal decision, all women should be made aware of their options and coverage,” said Salerno. “Unfortunately, studies have found that too few women are fully informed of their options—especially racial and ethnic minority groups. This legislation complements the work currently being done in communities across the country by Komen Affiliates ensuring that all women have access to high quality, affordable care.”

Breast cancer patients, regardless of their race or ethnicity, yearn to regain a 'normal' life after treatment. .... Losing a breast and wanting reconstruction is not about vanity, it is a way for breast cancer patients to rebuild their lives on a physical, emotional and psychological level, said Dora Arias, Founder and Executive Director of Curémonos, an organization that helps patients who are medically underserved Latinas.

The American Society of Plastic Surgeons, an organization deeply committed to educating women about the availability of procedures that can support their breast cancer recovery, was represented by Dr. Gregory Greco, who noted that the wounds of breast cancer are not just physical; they are emotional, psychological and spiritual. “More and more, healthcare providers and patient champions understand that repairing cancer’s non-physical damage is part of our job as members of the cancer team,” says Greco. “For many women, that sort of healing, the kind that comes when someone feels whole again, can only be fully recognized through the reconstructive process. The Breast Cancer Patient Education Act Coalition works to improve patient outcomes and quality of life.”  

"I'm hopeful that the legislation will pass. I hope that this and other similar forums will help make sure that woman are aware of their options," Lance told TAP into.

This month, Lance also introduced H.R. 2739, the Cancer Drug Coverage Parity Act, which would require health insurance plans that cover traditional chemotherapy to provide equally favorable coverage for orally-administered anti-cancer medications. This bill is a critical step towards improving access to anti-cancer drugs by requiring companies to cover patient-administered and physician-administered anti-cancer drugs at the same cost. Correcting this disparity in coverage will enable cancer patients to make healthcare decisions based on the best information and the best course of care available to them, rather than on cost and/or accessibility to treatment.

At the conclusion of the discussion, Lance reinforced his conviction that both these initiatives are bi-partisan in nature and address issues that potentially affect every member of Congress. He expressed his hope that “this is where the nation will come together” and that he will “work in Congress to bring these priorities and all priorities of the breast cancer community to action in Washington.”

To have Congressman Lance come to an affiliate was a privilege, said Tina Jacobs, Director of Community Health at Susan G. Komen North Jersey. "He is becoming a true champion."

About Susan G. Komen North Jersey:

The mission of Susan G. Komen North Jersey is to provide funding for breast health services, breast cancer education and outreach in our 9-county, region: Bergen, Essex, Hudson, Morris, Passaic, Somerset, Sussex, Union and Warren.

Through events like the Komen North Jersey Race for the Cure®, Komen North Jersey invests 75 percent of the funds raised to support vital local breast health services, and dedicates the remaining 25 percent to national research to find the cures.

Thanks to our donors, Komen has invested more than $2.2 billion — through groundbreaking research, community health outreach, advocacy and programs
in more than 30 countries — in our focus to end breast cancer forever.

Komen has invested more than $750 million in research grants since we began in 1982, helping to understand breast cancer, find better screening and early detection methods and develop improved prevention and less invasive treatment strategies.

Our research will, one day, lead to the cures.

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