Health & Wellness

Press Releases

Lance Honors Rare Disease Advocates at the House Chamber

ed36537e522c9b24fe26_image001.png
ed36537e522c9b24fe26_image001.png

TRENTON, NJ - "There is a lot to do - but we'll do it together," said Congressman Lance who recognized the advocates to the Chamber during Rare Disease Week. 

Lance's remarks as delivered:

This week we recognize the work of the tireless advocates for rare diseases.  I have the honor of serving as the Republican Chair of the Congressional Rare Disease Caucus.  I consider it a very important responsibility as part of my service here and an honor to work for innovative treatments, new technologies and to build an atmosphere of appreciation and understanding on Capitol Hill for the hard work of all the patient advocates.  Their passion is often driven by the care of loved ones and their personal stories are profiles in courage.

Hearing from countless advocates –many of whom are here in Washington this week – gives the members of the caucus renewed energy and purpose.  Events held during Rare Disease Week highlight what has been accomplished and what still needs to be done, and there is a lot to do – but we’ll do it together.

I am working on important legislation in this area.  The bipartisan "Modernizing Our Drug and Diagnostics Evaluation and Regulatory Network (or MODDERN) Cures Act" which will would update the Nation’s drug evaluation process to encourage the discovery and development of new treatments for chronic and rare diseases.  The measure will also create a system that rewards efficiency and effectiveness to the benefit of all persons with rare diseases.

Sign Up for E-News

The MODDERN Cures Act will encourage the development of drugs abandoned in the development process. It will create a new category of drugs known as dormant therapies for compounds with insufficient patent protection.  Drugs that offer the promise to treat conditions with unmet medical needs.

Updating regulatory networks such as patent reform will help open the pipeline for new innovations and therapies.  Patients with degenerative conditions, cancers and rare diseases await the genius of these new solutions.

While we do not know the cause or cure of many of these rare diseases or cancers, we do know that awareness is the best protection, information is the best tool for innovation and well-rounded care during and after treatment is the best therapy.

That is our mission in the caucus.  To work together to find solutions that make a lasting difference.  I again thank the families and advocates whose challenges we may never completely understand but whose commitment to their loved ones is unyielding and inspiring.  The caucus pursues its mission in their name.

http://www.youtube.com/watch?v=hfzRxKpSluA&feature=youtu.be

Video Credit C-SPAN

TAP Into Another Town's News:

You May Also Be Interested In

Sign Up for E-News

Berkeley Heights

Free Public Panel Will Explore Sexual Assault and Consent

April 20, 2018

The Union County Board of Chosen Freeholders invites members of the public to attend a panel discussion on sexual assault and consent on Wednesday, April 25 at 2:00 p.m. in Room N-4 at Union County College, 1033 Springfield Avenue in Cranford. The panel will feature a question and answer session.

The panel discussion is intended to raise awareness about sexual assault and consent in ...

Annual Fishing Derby Returns to Oakwood Park on Saturday, April 28

Mark your calendars!  The annual Fishing Derby returns to Oakwood Park Saturday, April 28th, rain or shine, from 8:00 – 11:00am.  Co-sponsored by New Providence P.B.A. Local #132 and New Providence Recreation, this family favorite event is one of the borough’s “signs of spring”!

Bring your rod, reel & bait to fish for trout of varying sizes stocked in ...

Free Living History Event Showcases World War I Centennial

The Union County Board of Chosen Freeholders invites residents and visitors to experience battlefield life as a World War I American Salvation Army volunteer, featuring Ms. Laurie MacDonald-Gaulke, actress and storyteller, in a special free presentation of “Doughnuts for Doughboys: A Salvation Army Lassie in France.”

Doughnuts for Doughboys takes place on Tuesday, April 25 at ...

Thank You, St. Joseph's Volunteers

April 16, 2018

Thank You from St. Joseph Social Service Center

In recognition of National Volunteer Week, we would like to express our gratitude to the countless volunteers that serve the poor and homeless at St. Joseph Social Service Center in Elizabeth (http://www.sjeliz.org).  Whether you make a sandwich, collect toiletries, tutor in the job program, make soup, wrap Christmas gifts, donate food, ...

New Providence Borough Council to Cultivate Relationships with County Officials

April 12, 2018

NEW PROVIDENCE, NJ – Councilman Robert Robinson touted the importance of personal relationships with Union County representatives at the Monday, April 9 council meeting.

Union County Freeholders Angel Estrada and Bette Jane Kowalski attended the Street Smart campaign kick-off event prior to the meeting providing the council members with the opportunity to chat face-to-face with the two ...

Chatham Township Committee Unanimously Adopts Ordinance to Ban Marijuana Retail Sales; Cannabis Advocates Disagree

April 13, 2018

CHATHAM, NJ - Chatham Township Mayor Curt Ritter began the new year by pledging to oppose Gov. Phil Murphy's plan to legalize the recreational use of marijuana and Thursday night he followed through by voting to adopt an ordinance that prohibits "marijuana cultivation, production testing, manufacturing facilities and retail stores' in the township.

The Chatham Township Committee ...

Upcoming Events

Carousel_image_11433c9e92ddbc063eae_103a27776b9f3cdaaab1_img_2579

Sat, April 21, 11:00 AM

Our Lady of Peace , New Providence

Our Lady of the Peace Church Holds Healing & ...

Sun, April 22, 1:00 PM

17 Kent Place Boulevard, Summit

Self-Care Event

Health & Wellness

Sun, April 22, 1:00 PM

17 Kent Place Boulevard, Summit

Self-Care Event

Health & Wellness

Sun, April 22, 1:00 PM

Miller-Cory House Museum, Westfield

Sheep to Shawl Festival

Other

Sun, April 22, 1:00 PM

Miller-Cory House Museum, Westfield

Sheep to Shawl Festival

Education Other