Government

Press Releases

Lance to Advocates: Tourette Syndrome Research A Priority

78a0f33fc9e1afd2667d_stock_image_-_government_revised_-_v1.jpg
Credits: TAP Staff
78a0f33fc9e1afd2667d_stock_image_-_government_revised_-_v1.jpg

NEW JERSEY - Congressman Leonard Lance (NJ-07) welcomed leading advocates for Tourette Syndrome research to his district office to outline his upcoming legislative initiative to push for more research funding.  The advocates spoke with Lance about the importance of continued educational, medical and training improvements concerning the disease.

Lance told the group he will lead a letter to his colleagues requesting support for $2 million to the Public Health Education and Research Program on Tourette Syndrome.  The letter will be directed to the House Committee on Appropriations for consideration toward the crafting of fiscal year 2016 spending measures.  

Continued funding for these crucial public health programs are needed to ensure progress in understanding and treating Tourette Syndrome.  Education, training and awareness about this disorder will help overcome the social stigma and challenges that children with Tourette Syndrome face each day at school, work and play.  This program brings hope to the hundreds of thousands of families affected by Tourette Syndrome and I will fight in Congress to protect it.  I thank the work of the advocates who join me in this effort,” said Lance, a member of the Energy and Commerce Health Subcommittee.

Sign Up for E-News

Tourette Syndrome is a part of a spectrum of hereditary, childhood-onset, neurodevelopmental condition referred to as Tic Disorders.  These conditions affect both children and adults, causing them to make sudden, uncontrollable movements and/or sounds called tics.  Tic Disorders can range from mild to severe and, in some cases, can be self-injurious, debilitating and markedly reduce the quality of life.  While some treatments are available for people with Tourette and other Tic Disorders, approaches to care are inconsistent, medications are often ineffective and there is no cure.  Today it is estimated that one in every 100 children in the United States is living with Tourette or other Tic Disorders.  

Faith W. Rice, Executive Director of the New Jersey Center for Tourette Syndrome and Associated Disorders (NJCTS) and resident of Lebanon Township, has been a champion of the Tourette Syndrome cause.  “NJCTS is proud of the partnership we’ve had with Congressman Leonard Lance for over 12 years. Working with Rutgers University and the State of New Jersey, NJ Center for Tourette Syndrome and Associated Disorders was  launched as the nation’s  first center of excellence for Tourette Syndrome in 2004.  As such we provide services and advocacy for children and families, outreach to the education and medical communities, and support for collaborative research for better treatments and a cure for TS.  Through its core programs NJCTS has reached more than 500,000 families and professionals.”

Lance and the advocates decided on a course of action that will urge cosigners to join Lance’s letter and build progress on Capitol Hill.  Annetta Hewko, Tourette Syndrome Association President, added, “we are indebted to Congressman Leonard Lance who is a true advocate for all those living with Tourette and other Tic Disorders.  His leadership is crucial in garnering the support needed to further our shared mission of raising public awareness and improving care, but the bottom-line is that treatment options for Tourette remain limited and the cause is still unknown.”  The Tourette Syndrome Association works to raise awareness, fund research and provide on-going support to individuals and families. The Association directs a network of 32 Chapters and more than 55 support groups across the country.

Industry praise:

Elridge Proctor MPA, Vice President of Public Policy:

“In recent years we’ve achieved an unprecedented amount of legislative support for Tourette Syndrome, yet we are faced with the challenge of renewing critical funds annually for the Public Health Education and Research Program at the US Center for Disease Control and Prevention (CDC).  As a recipient of TSA’s 2012 Public Policy Award and a strong supporter of families touched by Tourette and rare disorders, Congressman Lance remains an integral partner of our Association and his work underscores the impact federal support has on efforts to educate the public and our government about TS.”

 

Dr. Kevin St.P. McNaught, the national Tourette Syndrome Association’s Vice President for Medical and Scientific Programs:

“The renewed funding will keep essential collaborations like the TSA’s Public Health Education and Research Program at the CDC strong and enable continued innovation for TS and Tic Disorders. We are excited to expand these efforts to increase access to evidence-based treatments and continue critical research through the Association’s partnership with the New Jersey Center of Excellence at the Atlantic Neuroscience Institute at Outlook Medical Center.”

 

Roger Kurlan, MD, Director of the Atlantic Neuroscience Institute component of the TSA Center of Excellence:

“The movement disorders program at the Atlantic Neuroscience Institute (ANI), Overlook Medical Center, Summit, NJ is pleased to be part of this integrated, multi-disciplinary and collaborative center of excellence. The ANI provides expert diagnosis, treatment and research programs for children and adults with TS.”

 

Lance Letter to the House Committee on Appropriations:

 

March __, 2015

Dear Chairman and Ranking Member:

As members of Congress who are committed to improving the lives of children and adults with Tourette Syndrome in the United States, we respectfully request your support for $2 million for the continued funding of the Tourette Syndrome Public Health Education and Research Program at the Centers for Disease Control and Prevention, in partnership with the national Tourette Syndrome Association.

Tourette Syndrome (TS) is a hereditary neurodevelopmental disorder that typically develops during childhood and persists into adulthood, making it a life-long condition for most individuals. The disorder affects children and adults in all racial and ethnics groups.  The symptoms of this disorder are rapid, repeated, and involuntary movements and sounds called tics, which can range from mild to severe and disabling. People with TS often have other conditions, such as Attention Deficit Hyperactivity Disorder (ADHD) and Obsessive Compulsive Disorder (OCD). Tourette Syndrome is an often misunderstood and stigmatized disorder that impacts as many as one in 100 Americans.  The disorder can have a profound, negative impact on the quality of life of those who are affected. The cause of the condition is unknown. There is no cure and treatment options are very limited.

In 2000, Congress passed the Children’s Health Act (P.L. 106-310).  This Act authorized the Tourette Syndrome Public Health, Education, and Research Outreach Program to increase recognition and diagnosis of Tourette Syndrome, decrease stigma attached to the disorder, and increase the provision of appropriate, effective treatment to those with Tourette Syndrome.

The program continues to successfully educate and train physicians, allied healthcare workers, and education professionals to ensure proper and timely diagnosis and treatment of children with Tourette Syndrome.  The comprehensive epidemiological study of the disorder, also supported by this program, will be critical for understanding and treating this disease.  This study will seek to determine the prevalence of the disorder in the general population and the frequency of co-occurring disorders such as Attention Deficit Hyperactivity Disorder and Obsessive-Compulsive Disorder.  The knowledge gained from this research will greatly improve the lives of children and adults with Tourettes Syndrome.  We respectfully request that you include $2 million for the Tourette Syndrome Public Health Education and Research Program at the Centers for Disease Control and Prevention in the FY 2016 Labor HHS Appropriations bill.

We thank you and commend you for your leadership in ensuring an ongoing federal commitment to the improvement of health and the expansion of research, treatment, education, and prevention of diseases and disorders.                    

Sincerely,

###

TAP Into Another Town's News:

You May Also Be Interested In

Sign Up for E-News

Berkeley Heights

'Tired of cronyism? Yeah, us too'

July 21, 2018

The Union County Freeholders’ decision to appoint State Senator and newly-elected Union County Democratic Chairman, Nick Scutari’s chief of staff, Ed Oatman as County Manager smelled of corruption from the start. To place a political consultant like Oatman in the role of overseeing 2,800 employees and running the day-to-day operations of the $500 million county budget suggests ...

TAPinto Spotlight on Business Features New Providence Dentistry

July 17, 2018

NEW PROVIDENCE, NJ - TAPinto "Summer Spotlight on Business" features local businesses and their owners who are important to our communities. Follow this column to receive a fresh perspective on small business owners and their unique needs while shining a spotlight on their stories.

This edition features New Providence Dentistry, operated by Dr. Beth Herko and her staff of ...

Avoiding 10% Tax Penalty

Do you want access to money from your retirement accounts but aren't sure of the real costs involved?

Most retirement accounts have a set age requirement you must reach before making penalty-free income distributions, which is usually 59.5 but can sometimes be as early as age 50. If you decide to access your accounts earlier, you could face penalties ranging from 10%-25%, which is not ...

Caring Contact Volunteer Listener Training

July 21, 2018

Caring Contact Volunteer Listener Training Fall 2018

Are you looking for a flexible, rewarding volunteer opportunity?

Have you ever been told you are a good listener?

Do you have a yearning to really make a difference?

Become a Caring and Crisis Hotline Listener.

You could save a life.

Volunteers receive 52 hours of comprehensive training in active listening, Mental Health ...

Shakespeare in the Park Returns to Union County Sunday, July 22

The Union County Board of Chosen Freeholders is pleased to announce the return of Shakespeare in the Park this weekend. The performance will be presented on Sunday, July 22 at 12:30 p.m. at Cedar Brook Park in Plainfield.

The Shrew Mechanicals Troupe from The Shakespeare Theatre of New Jersey will present an hour long performance of “Shakespeare Gumbo,” a stirring collection of ...

Enjoy a Lifetime of Discovery in Union County Parks

July is National Parks and Recreation Month, and Union County residents are invited to celebrate this year by exploring “undiscovered” programs and activities found throughout the nearly 6,200 acres of the Union County parks system.

“Union County was one of the very first counties in the United States to establish its own county-based park system for nature conservation and ...

Union County Honored for History Projects

ELIZABETH, NJ - The Union County Board of Chosen Freeholders is pleased to announce that two national achievement recognitions for history projects have been presented to the Union County Office of Cultural & Heritage Affairs, a division of the Department of Parks and Recreation.

“Union County is rich in history, and this Freeholder Board is committed to engaging the public with ...

Geoffrey the Giraffe Moves In To New Brunswick Children's Hospital

July 12, 2018

NEW BRUNSWICK, NJ - Over a stretch of nearly 70 years, Geoffrey the Giraffe at Toys R Us stores was the symbol of happy times for generations of children, and now he may provide those same feelings for children coming to a hospital.

"From this day forward, Geoffrey stands tall in our lobby to encourage our smallest patients to smile when they enter our facilities," said John ...

Upcoming Events

Carousel_image_c8cb6b45d2b342be3cbb_nancy_ori

Sat, July 21, 10:30 AM

New Providence Memorial Library, New Providence

Cuba: Observations of a Photographer

Arts & Entertainment Travel

Sat, July 21, 10:30 AM

New Providence Memorial Library, New Providence

Cuba: Observations of a Photographer at NPML

Arts & Entertainment

Sun, July 22, 2:00 PM

Scherman Hoffman Wildlife Sanctuary, Bernardsville

NJ Audubon: Moths and other Pollinators

Education Green

Carousel_image_634bcda860ed17650f72_93a8625c-ce9d-413f-a61e-4b2df4fe0604

Tue, July 24, 3:00 PM

Grillestone Restaurant , Scotch Plains

Hear the Story of Amelia Earhart, America's Most ...

Arts & Entertainment Food & Drink

Carousel_image_e6c7d5b8a558926ee4c5_8e2f7c3f3d7547130a87_swim_team_2

Tue, July 24, 5:30 PM

Summit YMCA, Summit

Summit Area YMCA Swim Team Tryouts July 24th

Health & Wellness

Carousel_image_e6c7d5b8a558926ee4c5_8e2f7c3f3d7547130a87_swim_team_2

Tue, July 24, 5:30 PM

Summit YMCA, Summit

Summit Area YMCA Swim Team Tryouts July 24th

Health & Wellness

Special June Episode of 'Berkeley Heights Here & Now' Features 6th Annual Street Fair

BERKELEY HEIGHTS, NJ – The Berkeley Heights Communications Committee (BHCC) today announced a special edition of Berkeley Heights Here & Now is available on the Township website, www.berkeleyheightstwpnj.gov.

 

The special episode features the 6th Annual Berkeley Heights Street Fair held on June 24 and includes onsite interviews with attending residents/visitors, event ...

And Over Here is the Dining Hall 2

My very first job in admissions was while I was still an undergraduate myself as a tour guide.  Very early on they indoctrinated us with some tricks of the trade.  It’s a dining hall, not a cafeteria.  A residence hall, not a dorm.  If you have to divulge some negative bit of information, sandwich it between two positives.  There were instructions for glossing over ...

Women Have Special Financial Needs That Advisors Overlook

Women have special financial needs that advisors overlook in two ways: 1) advisors don’t always acknowledge the different planning needs women have and 2) advisors don’t always communicate well with female clients – especially if the client comes to a meeting with her husband. It’s very common for a male advisor to spend much or most of the face time in meetings talking to ...

5 Simple Ways to Save Water this Summer

According to the L.A. Times, the average American uses an estimated 98 gallons of water EACH day.  

Here are five simple ways you can save water, to help you conserve water this summer and take some pressure off of your drains.

1. Unless you are using it, turn the faucet off. How many of us still leave the water running while we shave or brush our teeth?According to ...