READINGTON, NJ- – As many as one in 100 children and adults live with Tourette Syndrome (TS) or another tic disorder. That includes 10-year-old Sofia Trabilcy of Readington.
Sofia recently attended a youth advocate training conducted by NJ Center for Tourette Syndrome and Associated Disorders (NJCTS) and was inspired by one of the current advocates who shared his story.
She immediately started work on her own speech so she can share it with her class at school., but she wanted to do more. So Sofia, who is also a competitive gymnast, pulled together family, teammates and friends to join her at an upcoming fundraising walk at Pickell Park. Her team, Trabilcy Tackles Tourettes, has raised nearly $3,000 to date.
Kids, teens and adults throughout New Jersey are creating teams with the goal to spread awareness about Tourette Syndrome as part of the NJ Walks for TS virtual event. Participants can walk wherever and whenever they like during April and May to bring awareness to this often misunderstood and misdiagnosed disorder.
Proceeds from the walks benefit important NJCTS programs including educational outreach and youth advocacy training. Those who wish to support Team Trabilcy can visit www.njcts.org/trabilicy to make a donation. Learn more about NJCTS at www.njcts.org.