SEA BRIGHT, N.J. - They were called to action...and they came. Men, women and children from near and far joined together in Sea Bright to walk in the Run with the Royals 5K in support of Vienna Carly Savino. Vienna's family, from Holmdel, launched "Team Vienna" to honor her and raise awareness of Sudden Unexplained Death in Childhood, SUDC. Vienna died unexpectedly on 11-12-17. She would have turned 3 on January 19, 2018.
On May 19, They clearly met the goal they set forth for Vienna and are building upon a legacy that honors her and provides critical education to people across the country and the globe in understanding the unimaginable tragedy of SUDC.
During the walk, over 200 attendees showed their support. This included supporters from different states nearby and across the country. Also, supporters and friends across the world such as Australia, Spain, Colombia, Israel and Mexico sent photos of support. "Today was an amazing day for us, Team Vienna, and SUDC!" said Vienna's mother, Denise Wunderler Savino. "We are so thankful, despite the rainy weather and friends/family traveling long distance to get to Sea Bright, over 70% of those who registered for Team Vienna came to the race! There was phenomenal positive energy in the air— our sweet Vienna brought everyone together today, and we were all there to honor her beautiful spirit and raise SUDC awareness. We are so appreciative of everyone involved with the race today to make it a great success, especially Michaela Ferrigine and the Run with the Royals committee, who made us part of their race."
Over 200 joined locally and others nationally and internationally to talk about Vienna and hear about her. They joined to share their love for her and her family and say and hear her name.
Below is from Vienna's mommy; Denise Wunderler Savino:
TEAM VIENNA (SUDC AWARENESS) was FIERCE and came out in FORCE in Sea Bright, NJ on May 19, 2018! NOTHING was going to stop the team from coming out. WOW!!! Despite the weather, over 200 were there for our darling Vienna in Sea Bright. Then the pictures started rolling in from all over the US, coast to coast, and overseas, namely Colombia, Israel, Spain, Mexico, and Australia. Tears streamed down my face as I viewed all these pictures, realizing how many people around the globe were remembering Vienna that day. Everyone could have done something else, but you chose to take the time out of your busy lives for our baby girl - whether you were at the Jersey Shore with us, hiking in the red rocks in the Garden of the Gods in Colorado, walking along the walls of the old city of Jerusalem, strolling in the rain along the Lehigh River in Northampton, PA, walking in Louisville, KY or Holmdel, NJ or Portland, OR, doing 5K rounds at the hospital in Sacramento, walking the beach in Perth or Cancun or Barcelona or Hawaii or San Diego or the Outer Banks, doing a scavenger fun run in Princeton, hiking in Arizona or Virginia or Ohio or New Mexico or Bethlehem, PA, dedicating your power lifting workout in Arizona, running in Mississippi or NJ or Washington state, riding your horse in NJ, walking in your neighborhood in Tampa or Colombia or Montana or Los Angeles or New Jersey, biking in Texas, or running on your treadmill at home in North Carolina - you remembered Vienna. This show of incredible support and love means the world to our family. HUGE THANK YOU to TEAM VIENNA- GLOBAL!!!! THANK YOU to everyone who braved the wind and rain in NJ to be there to show us your support in person. It was unbelievable, and I couldn't believe my eyes when I saw all the indigo blue Team Vienna gear! Remembering back to the early days of setting up Team Vienna (Feb 2018), the race director asked me how many I was expecting on my team; I told her about 15 to 20. In the end, 282 signed up for Team Vienna, and more wanted to but the race was closed. My shirt guy from Jersey Shore Apparel, asked me how many shirts I think I'll need; I told him about 30. In the end many hundreds of shirts were sold! Team Vienna EXPLODED, and on May 19, 2018, it turned into an international phenomenon, to honor our darling Vienna and bring attention to the almost unheard of category of death, SUDC- Sudden Unexplained Death in Childhood. We are so thankful for all of YOU! More awareness walks/races to come; we have a long way to go!
Original Story and Letter from Her Family: Printed March 5, 2018 Below:
A CALL TO ACTION: JOIN THE WALK ON MAY 19TH
by Denise Wunderler Savino
"We want to talk about her and hear about her. We want to say and hear her name" Denise Wunderler Savino
HOLMDEL, N.J. - A Special Letter to Readers from the Family of Vienna Carly Savino:
We would like to introduce our darling Vienna Carly Savino. Our healthy daughter was 2 years 9 months 3 weeks old when she died suddenly and unexpectedly on 11-12-17 in Holmdel. January 19, 2018 would have been her 3rd birthday.
Vienna was a fun, free-spirited, silly, beautiful girl, who loved to pretend to read, sing, dance, explore various fashion choices, help her friends at school, and play with her family. She always had a smile to share with a loving, caring heart. She was a ray of sunshine to all those fortunate to have met her.
We are so grateful for the support and love given to us from the community since her passing. Especially with being new to the area, we were very moved by our neighbors, new friends, old friends, acquaintances, and strangers who made themselves known to us, who were willing to help in all ways. We are thankful for our babysitter, The Holmdel Police Department, The Holmdel First Aid Squad, MONOC paramedics, and Bayshore Hospital Staff, who we believe did their best to try and save our daughter.
We were 1 hour away from home at a wedding when she passed away. On our way home from the wedding, we received the call from our babysitter that she was not breathing and paramedics were on their way. The police and paramedics attempted to resuscitate her for nearly 45 minutes at home, then transported her to our local hospital. We met them at the hospital, where Vienna was pronounced dead at 8:05pm.
Her autopsy found nothing that would cause her demise. So now we are left with no explanation of why she died except SUDC, Sudden Unexplained Death in Childhood. Most often, these seemingly healthy children, ages 1-18, go to sleep and never wake up. The SUDC Foundation has helped us out tremendously in many ways since 11-12-17, and we are very thankful for the free services they provide to our family.
Medically, she had a remote history of febrile seizures. She had 2 simple febrile seizures and 2 complex febrile seizures (occurring in 1 day) over the course of six months in 2016. Her last febrile seizure was 15 months before her death. Since then she had her fair share of low grade fevers from being exposed to common childhood viruses in a daycare environment, and they all resolved uneventfully.
On the morning of November 12th, 2017, she had a low grade fever, which resolved with some ibuprofen. The rest of the day, she was eating well, playing with her older sister and brother, and by all accounts of our babysitter, doing well. She took a longer than usual nap lasting about 3 hours, but awoke fine, ate dinner, and continued to play with her siblings. Around 6:40 pm, she lay down on the floor in our family room, and when our babysitter checked on her about 10 minutes later, she did not seem to have a pulse and was not breathing.
I have my various projects to help with my grieving: Vienna flowers, Vienna books, Team Vienna shirts, and Team Vienna. I'm trying to make something positive out of this unimaginable tragedy. I am trying to absorb the fact that she is never coming back and want to carry on the "Vienna Effect" of sharing smiles, happiness, fun, living life, being present in the moment, and her ray of sunshine. Our family will be leading “TEAM VIENNA” in her honor and to raise SUDC awareness, as we walk in the Run with the Royals 5K in Sea Bright, New Jersey, on Saturday, MAY 19, 2018, at 10am. https://runsignup.com/Race/NJ/SeaBright/RoyalsRun5K We would love if you could join us (adults, teens and children--all are welcome). However, if you are unable to come to Sea Bright, please consider walking in Vienna's honor on 19 May, and sending me a picture at TEAMVIENNA2018@YAHOO.COM. Pictures will be posted on Vienna’s website, http://sudc.org/vienna. Many friends/family will be walking in many states in the USA and in Spain and Israel so far, on the same day, at the same time if possible. Team Vienna shirts, sold to raise much needed funds for the SUDC Foundation (no federal funding), will be available online from Friday April 20 - Wednesday May 2, 2018, at http://jerseyshoreapparel.com/teamvienna .
Please watch this powerful video in memory of children gone too soon; Vienna is at 1 minute 15 seconds, on the left. Still can’t believe she is gone. http://sudc.org/sudc-facts/faces-of-sudc
If you are looking for a charity to donate to in Vienna’s memory, they are of course a very worthwhile cause (www.sudc.org/vienna). Through the Foundation, we learned about the SUDC research at NYU (in collaboration with Columbia and Mayo Clinic), in which we enrolled Vienna and ourselves.
If more people know about SUDC, and if a cause is discovered, maybe one day other parents won't go through the daily torture of having lost a healthy, young child for no reason. She was an amazing little girl. Thank you very much for reading this.
Please remember her. We want to talk about her and hear about her. We want to say and hear her name. We want to know that others have not forgotten about her in years to come. She will always be one of our 3 Vs.
Heartbroken but surviving; Denise and Mike, Vienna’s big sister, Vienna’s big brother, and our Angel Vienna
pictures and video are used with permission of the family