Giving Back

Night With The NJ Devils Fundraiser To Help Local Teen Battling Rare Disease

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SPOTSWOOD, NJ - For 13-year-old Rayne Weiner, lacing up skates and giving ice hockey a try would be a dream. The teen suffers from Behcets-Vasculitis, which is a rare and debilitating disease. There isn't a known cure for Behcets-Vaculitis and treatment involves controlling the symptoms, which include painful oral and genital ulcers as well as other skin lesions. Behcet's can also cause inflammation in the eyes. If not treated, the eye inflammations can lead to blindness. Other complications of the disease are arthritis and gastrointestinal issues.

Weiner is home-schooled because of her illness and has had to give up much-loved activities like gymnastics due to her symptoms. Rayne's Hope has been set up to raise awareness about the little known disease in addition to assisting the family with the rising medical costs to manage her symptoms. According to the Rayne's Hope Facebook page, the family's medical insurance does not cover all of the prescription costs for Weiner's treatment or specialists that may be able to help with her care. While there isn't a cure for Weiner's illness, the family hopes for remission.

On Saturday, March 25, Rayne's Hope is hosting a Night With the New Jersey Devils at the Prudential Center in Newark. All of the proceeds from the fundraiser will go towards the teen's medical care. Ticket prices for the Devils game against the Carolina Hurricanes are discounted since they are group tickets. Prices for seats in section four cost $80 while seats in section 130 are priced at $70. The group package includes a discounted ticket, group seating, a scoreboard welcome and a group gift for those attending the game.

To order tickets for the Rayne's Hope hockey fundraiser, contact Laurie Anne Weiner by email at lweiner5974@gmail.com. Tickets must be ordered by March 1. For more information on Rayne's Hope or to make a donation, visit the Rayne's Hope Facebook page and/or website.

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