MONTCLAIR, NJ - Retired Montclair firefighter Kevin Berry is battling ALS and is seeking support for a new treatment drug.
The New Jersey State Firefighters Mutual Benevolent Association (FMBA) circulated a petition on behalf of Berry, who was a member of Montclair Local 20.
According to the NJFMBA, Berry, who retired from fire service as Battalion Chief nearly 5 years ago with the Montclair Fire Department, is currently not responding to treatment.
He began his career as a firefighter at age 22, married his best friend, Vicki and at age 35, and together, they have a daughter.
For close to 30 years Berry served Montclair. In early November, a fundraiser was held to assist Berry, who had applied to be a part of a clinical trial for a promising new treatment but was rejected and is now going to try alternative and experimental treatments that are not covered by insurance. More than $14,000 has been raised to assist him.
The FMBA is now circulating the petition to assist in getting a new FDA treatment drug approved. According to the release, Berry is also trying to get into a program where the special un-approved drug is being administered.
If approved by the FDA, Berry believes this treatment would benefit all ALS patients.
The link to sign the petition is below: