MONTVILLE, NJ – The Children’s Cardiomyopathy Foundation (CCF) nominated CCF parent Sarah Foye of New Jersey to serve as consumer advocate to participate in the evaluation of research applications submitted to the Congressionally Directed Medical Research Programs’ (CDMRP) Peer Reviewed Medical Research Program (PRMRP) for the Department of Defense. As a consumer reviewer, Foye was a full voting member, along with other prominent scientists, at meetings to help determine how the $360 million appropriated by Congress for fiscal year 2020 will be spent on PRMRP research.
The goal of the PRMRP is to fund studies that can improve the health and well-being of military personnel and their families with the potential to benefit all Americans. The PRMRP fills important gaps not addressed by other funding agencies by supporting groundbreaking, high-risk, high-gain research while encouraging out-of-the-box thinking, to improve the health, care, and well-being of all service members, veterans, and the American public. Consumer reviewers work together with scientists to evaluate the scientific merit of research applications. They are asked to represent the collective view of patients by preparing comments on the impact of the research on issues such as diagnosis, treatment, and quality of life.
When commenting on serving as a consumer reviewer, Foye said, “I was thrilled to participate in the grant review process for a second time and be a voice for families impacted by congenital heart disease. Reviewing these amazing proposals fills me with hope regarding potential future treatments.”
Consumer advocates and scientists have worked together in this unique partnership to evaluate the scientific merit of research applications since 1999.
Colonel Stephen J. Dalal, Director of the CDMRP, expressed his appreciation for the consumer advocate’s perspective during the scientific review sessions. “Consumer advocates are an integral part of the CDMRP’s scientific review process,” he said. “They provide a key ingredient to the review process, the patient’s perspective, which is real and urgent. The collaboration of consumer advocates alongside the scientists’ subject matter expertise is a truly unique collaboration that is difficult to find in most medical research programs.”
About the Children’s Cardiomyopathy Foundation
The Children’s Cardiomyopathy Foundation (CCF) is a national organization focused on finding causes and cures for pediatric cardiomyopathy. The foundation was established in 2002 to accelerate research and education, increase public awareness and advocacy, and offer support services to affected families. Since then, CCF has grown into a global community of families, physicians, and scientists, raising more than $15 million in support of its mission.
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