Health & Wellness

Press Releases

Connecting is important to parents of kids with special needs

46a9f99316937b689dd6_family_jumping.jpg
Credits: TAP staff photos
46a9f99316937b689dd6_family_jumping.jpg

EDISON – The NJCTS Parent Connection at Middlesex/Union scored a successful debut on September 12 when it bridged the gap for parents of children with Tourette Syndrome and other associated neurological disorders who often find it extremely difficult to locate, get to know and ultimately bond with other families struggling to mitigate through similar circumstances.

The Tourette Syndrome Association of New Jersey, in collaboration with the New Jersey Center for Tourette Syndrome & Associated Disorders (NJCTS), hopes to build on that momentum when the next NJCTS Parents Connection at Middlesex/Union meeting takes place from 7:30 to 9 p.m. Thursday, November 14, at JFK Medical Center’s Neuroscience Institute Library, 65 James Street in Edison.

The NJCTS Parent Connection is a bi-monthly meeting designed to provide face-to-face discussion, encouragement, friendship and networking for TS families through focusing on coping strategies. Tourette Syndrome – an inherited, misdiagnosed, misunderstood neurological disorder that affects 1 in 100 children – is difficult to live with and often can be very complicated and frustrating for fathers and mothers.

“Our first meeting went very well,” said Steven Lindenbaum, volunteer coordinator for the NJCTS Parent Connection at Middlesex/Union. “Two new families came to the meeting and cannot wait to return. They actually wanted the meet more often. The popular discussion topic revolved around what we do to cope with our TS, how we were able to cope with it in middle school, what strategies we had to help ourselves and what new information is out there now to try and help children cope today.”

In addition to learning more about Tourette Syndrome coping strategies and techniques, parents of children with TS often have expressed the need to connect with other families in their area. The NJCTS Parent Connection is the premier program in New Jersey for such interaction in the Tourette community.

“The NJCTS Parent Connection is an opportunity to get to know parents nearby and share the joys and challenges of living with a child diagnosed with Tourette Syndrome,” NJCTS Family Outreach and Volunteer Coordinator Leanne Loewenthal said. “A support network of others is vital to a family’s success, so we hope all TS families in Middlesex and Union counties take advantage of this wonderful chance to ‘make a connection.’ ”

The NJCTS Parent Connection at Middlesex/Union also is scheduled to meet in 2014 on January 9, March 13 and May 8.  But there will be a workshop for parents, centered on family support and genetics research, from 1 to 5 p.m. Sunday, November 10, 2013 at Hackensack University Medical Center – the NJCTS Parent Connection’s first foray into Bergen and Passaic counties.

For more information about the NJCTS Parent Connection at Middlesex/Union, the Hackensack workshop or one of the other four groups, please contact Leanne Loewenthal at 908-575-7350 or LLoewenthal@njcts.org. As a NJCTS Parent Connection date approaches, please stay tuned to www.njcts.org for updates on if the group still will take place on that date.

TAP Into Another Town's News:

Sign Up for E-News

Plainfield

Our Children, Our City, Our Future.

July 21, 2018

They say that charity begins at home and with almost 1000 book bags given to deserving Plainfield students at last year's National Night Out. We demonstrated unequivocally that we understand how important it is to help our children learn, and that we are a caring community.

Our ultimate goal is always to build paths to self-sufficiency, but we know and understand that there are times when ...

Plainfield BOE Member on Naming of the New School

July 12, 2018

On Tuesday, June 19, 2018 – I, Carmencita Pile, an elected Plainfield School Board member presented this during the Plainfield School Board monthly business meeting to the public and to the board after being recognized by Plainfield School Board President Mr. Richard Wyatt.

On Tuesday, August 8, 2017 at 12:10PM an email was sent from the Plainfield School District's Postmaster that ...

Video Emerges of Parents Arguing at Junior Baseball State Sectional Championships

July 21, 2018

FORT LEE, NJ -  Nutley made it to Junior League Baseball Section 2 Championship before falling to Saddle Brook last night. 

The game was marred by an incident that began in the bleachers during the third inning as parents representing both teams began shouting at each other.  The expletive-filled argument, behind the Nutley dugout and near child spectators, ...

Nuestros Hijos, Nuestra Ciudad, Nuestro Futuro

July 21, 2018

Dicen que la caridad comienza en la casa, y con casi un mil de mochilas donadas a los estudiantes de Plainfield en el "National Night Out" del año pasado, demostramos que entendemos lo importante que es ayudar a nuestros hijos en el aprendizaje, y que esto es importante para nuestra comunidad. 

Nuestro gol es construir los caminos a la autosuficiencia, pero sabemos y ...

La Guerra contra los Inmigrantes- Cuando es Demasiado?

"Primero, vinieron por los comunistas, y yo no hable- por que no era comunista.

Después, vinieron por los sindicalistas, y yo no hable- por que no era sindicalista.

Después, vinieron por los judíos, y yo no hable- por que no era judío. 

Después, vinieron por mí- y no hubo nadie para hablar por mí."

Este dicho por el ...

Mayor Mapp:  El Programa de Verano de los Jóvenes

El lunes, 9 de julio, nuevas caras alumbraran las oficinas de la Alcaldía. Nuestro Programa de Verano de los Jóvenes por fin comienza, y otra vez los empleados tendrán la oportunidad de ser mentores de un nuevo grupo de jóvenes.

El Programa de Verano de los Jóvenes corre por seis semanas todos los años y les da la oportunidad de empleo y experiencia a ...

Featured Business: Studio 15 Young Plainfield Entrepreneurs Expand Business Once More

“What you see behind me is a life-changing project for myself that I have been working on since January 2017, nearly two years, discreetly; not sharing much about it with anybody. I've had plenty of reasons to give up on this truck; I purchased it pretty much from the ground up from Rashine Mobile, another local city entrepreneur. The truck had no steering column, no computer; it ...

People I've Known and Been: Little by Little by Rich Little

People I've Known and Been: Little by Little by Rich Little (Dog Ear Publishing, 2015)

 

Rich Little is a national treasure; a living encyclopedia of movie stars, comedians, and former presidents all wrapped into one dynamic package. Recently, my husband and I had the good fortune to see Little perform at the Tropicana in Las Vegas, where he has been doing his uncanny ...

Lucia, Lucia by Adriani Trigiani

Lucia, Lucia by Adriana Trigiani (Ballentine Books, 2003)

 

If a summer romance novel is what you are craving to read as you sit by the pool or beach, Adriana Trigiani's Lucia, Lucia is a perfect choice. Set in 1950 New York City, the novel is about a young woman, Lucia Sartori, who is determined to have a career and be able to support herself, an unusual choice for a girl who was ...

The Anatomy of Escape by Mike Blue

The Anatomy of Escape: An Unconventional Adventure by Mike Blue (Available on Amazon)

 

Imagine that you could just say, “Chuck it,” and walk away from the bonds that keep you tied to what Mike Blue, author of The Anatomy of Escape: An Unconventional Adventure, defines as the restrictive Work-Consume-Die cycle. To most of us, becoming what Blue terms “a ...

The Death of Koko the Gorilla

Koko's Kitten, Koko's Story, The Eduction of Koko all by Dr. Francine Patterson

 

Last night when I heard about the death of Koko, the lowland gorilla who was educated to communicate through American Sign Language by Dr. Francine Patterson, I went numb with grief. I have followed the life of Koko, her two gorilla companions, Michael and Ndume, as well as Dr. Patterson for forty ...

The Woman in the Window by A.J. Finn

The Woman in the Window by A.J. Finn (William Morrow, 2018)

 

A friend, whose opinion on literature I respect greatly, reported to me recently that she had just finished reading A.J. Finn's debut novel, The Woman in the Window. Of it she said, “I wish I hadn't finished it,” which I interpreted to mean, “It was so good I'm sorry that I finished it.” ...

When the Men Go Off to War by Victoria Kelly

When the Men Go Off to War by Victoria Kelly (Naval Institute Press, 2015)

Victoria Kelly's first published volume of poetry, When the Men Go Off to War, is a wonder in that poems can be written so beautifully about the subject of war. Each poem is a jewel, polished and colorful, glittering with elegant imagery, and rich in emotional wallop. The book, divided into three sections, ...