ROXBURY, NJ – Jillian and Jason Spencer of Succasunna could try to find another place to live, one that would be less expensive than New Jersey. In a cheaper locale, they might find a home that would better accommodate their 4-year-old son who was born paralyzed from the waist down due to Spina Bifida.
But Roxbury - Jason’s home town - has been good to the Spencers, so they’re not going anywhere, said Jillian. For proof about that goodness, the Spencers need only think about what’s happening tomorrow at the Roxbury Performing Arts Center/Investor’s Bank Theater: A music event for kids that will raise money to help them.
The “Family Jam with Uncle Gerry Benefit Concert,” presented by Roxbury Arts Alliance President Genevieve Schmidt’s Merry Musicians, will feature an interactive performance by Gerry Dignan. Proceeds will go to the Spencers to help them expand and otherwise make their Condit Street house better suited for their son, Levi.
“He just has ongoing needs,” said Jillian Spencer, a photographer. “We have insurance, but it doesn’t cover everything. There are a lot of equipment needs and we’re looking to remodel the home to make it more accessible for him.”
Spencer said she and her husband, who also have a 5-year-old son and a 10-month-old daughter, love living in Roxbury. “Both our families and church are here,” she said. We really enjoy the school district he involved with (Kennedy Elementary School’s preschool program).”
Schmidt learned about the Spencers’ situation after she asked Jillian to take pictures of tomorrow’s concert. It was one of those coincidental things.
Gen contacted me to photograph the event tomorrow,” said Spencer. “When they were trying to decide what family to give the proceeds to, somebody mentioned Levi. Gen saw our Facebook page and realized I was his mother. It was a perfect fit.”
Supporters of the Spencers, called Team Levi, recently launched an online fundraising campaign, called Raising the Roof for Levi, in which they hope to raise money for the house project.
Tomorrow’s concert, which costs $10 per person or $25 per family, starts at 11 a.m. Tickets are available by calling 973-945-2828 or online.
It will be the kind of thing Levi should love.
“He’s an outgoing boy,” said his mother. “We tell him there’s no limitations. We need to make the best life for him that we can. That’s basically our motto.”