Giving Back

The Second Annual 'Hope for Holden to Benefit the Dup15q Alliance' on September 16 at Springfield's Chisholm Community Center

a669ec5793a0dbff26ff_Holden.jpg
Holden Weissberg Credits: The Weissbergs
a669ec5793a0dbff26ff_Holden.jpg

The second annual "Hope for Holden to benefit the Dup15q Alliance" tricky tray and Boot camp class is being held on September 16 at the Chisholm Community Center on 100 S. Springfield Ave..  The doors open at 10 a.m. and the event will go until 3 p.m.   

There will be a boot camp with Tovah Segelman that will begin promptly at 11:30 a.m.  Basket auction winners will be announced starting at 2:00 p.m.  You do NOT need to present to participate OR win--ask about our preview participation option!

To register for the event or donate please click on the link, Hope for Holden.  The cost of the event is $5 and children are free.  The cost of the class is $15 and there is no charge if you are already registered. Free childcare available for children ages 1-10 for any parent participating in the class.

Sign Up for E-News

You can purchase a t-shirt for $20 through the website only.  If you do purchase a t-shirt, please wear a "Holden's Heroes" shirt or your favorite superhero shirt because you are HOLDEN'S HERO!

Lauren Weissberg is the Springfield resident.  She and her husband, Marc have two sons, Reid and Holden.  Holden is over three years old and on May 16, 2016, he was diagnosed with Dup15q syndrome.  That means he has an isodicentric duplication of his 15th chromosome.  If you have not heard of it, do not be surprised, there are only about 1,200 people with Dup15q.  The disease is not well known or researched and to date, there is no cure. 

The Weissbergs are working parents balancing full time jobs, raising a family and also coping with the challenges of raising a child with a very rare disease that is not well understood and lacks well established and effective treatments.  They approach the challenge as “Team Weissberg” and get a great deal of support from many in the Springfield community and beyond it.  Their sources of strength include their faith and determination to increase the visibility of the disease in hopes it will lead to better treatment and eventually a cure.

They have increased visibility through the media and fund raisers.  Their first fund raiser took place a year ago at CKO Kickboxing in Springfield

The Dup15Q Alliance was created (http://www.dup15q.org/ to help better understand the disease. From its website, “Dup15q Alliance provides family support and promotes awareness, research and targeted treatments for chromosome 15q11.2-13.1 duplication syndrome.” Lauren says, “The motto of Dup15q is Believe.”

Here is the link to the donor page - https://dup15q.donorpages.com/HopeforHoldenWeissberg/.

TAPintoSpringfield.net is Springfield’s free daily news source. Sign up for our daily eNews and follow us on Facebook and Twitter @TAPSpringfield.

Download the TAPinto App!  Click here for Android.  Click here for iOS.

TAP Into Another Town's News:

Sign Up for E-News

Springfield

Update: Health Authorities Still Investigating Flu Death of Elizabeth Schoolgirl

February 19, 2018

ELIZABETH, NJ - The New Jersey Department of Health is continuing to investigate the cause of the passing of Daniela Genaro who attended Nicholas LaCorte - Peterstown School No. 3 after it was confirmed that the student had been diagnosed with influenza. Officials say, it "presently remains unclear whether or not the virus was the primary contributing factor to the child's ...

Keep Our Local Governments as Clean as Possible

February 14, 2018

Dear Editor:

 

I read with interest in a local newspaper regarding the Union county democrat party political infighting for their “county chair” selection. There were 2 letters juxtaposed, each one listing supporters of either Senator Scutari or Fanwood Mayor Mahr, who are the two main people vying for the “boss” position.

 

Although I am a ...

Another Holiday, Another Encounter with Marine Life along Jersey Shore

February 19, 2018

SPRING LAKE, NJ — In neighboring Spring Lake, a baby seal made its way onto the beach near the north end pavilion early this afternoon.

Photographer Nancy Orlowski discovered the harbor seal pup near the jetty situated just south of the pavilion on Ocean Avenue at Ludlow Avenue.

The seal’s Presidents Day appearance on February 19 comes one day after a whale was spotted off the ...

Seamen’s Church Institute Fundraiser & Collection at Trinity Cranford Feb. 25th

February 19, 2018

On Sunday February 25th Trinity Episcopal Church, 119 Forest Avenue, Cranford, New Jersey, will be holding a Bake Sale fundraiser for Seamen’s Church Institute(SCI) following both the 8:00 and 10:00 services. Trinity is also collecting trial-size shampoo, 2-4 oz. bottles of hand lotion, lip balm, soft pack of facial tissue, packs of chewing gum, and microwave popcorn, for SCI’s ...

Upcoming Events

Tue, February 20, 9:00 AM

The Cora Hartshorn Arboretum and Bird Sanctuary, Short Hills

Winter Break Camp at the Cora Hartshorn Arboretum ...

Education Green

Tue, February 20, 6:00 PM

UCEDC, Cranford

Next Level Business Planning

Business & Finance

Wed, February 21, 9:00 AM

The Cora Hartshorn Arboretum and Bird Sanctuary, Short Hills

Winter Break Camp at the Cora Hartshorn Arboretum ...

Education Green